James had his first day back to school today. He was greeted by his friends, teacher, and principal. All his classmates had made signs for him to welcome him back and a big sign was posted on his locker. James was very excited to be back.
His appointment at Children’s Medical Center last Thursday went well and Dr Lemler said everything looked good. He is still on a lot of medications, but will gradually wean off some of them.
We finally have James home. He had an appointment with the cardiologist, Dr. Samantha Le, at Texas Children’s Hospital Thursday (sept. 1st) and he is looking good. His oxygen level is around 93-94 and the fenestration is working. A small amount of fluid is still in his chest, but should absorb by itself according to the Dr. He was finally ready for the trip home.
After James spending 33 days in Houston, the family is together again. James will stay home from school for another week and then slowly get back in the groove. He has done a lot of blood draws, x-rays and we are so glad he does not have to go through that anymore. He is on several different medications, but they will gradually decrease. He has been woken up at 6am for a hard x-ray board placed under your back in the bed, then awakened again at 7am having someone stick a needle in his arm to draw blood. Taking 10 different medications all through the day and night. It has been a lot for James, but he has been a true warrior throughout all this.
We are meeting with Dr. Matthew Lemler at Dallas Children’s Medical Center next Thursday to update him and get back making our appointments locally. We are all happy to have our James home and getting back to our normal daily life.
Thanks for all the support, gifts, and prayers. We truly appreciate it, it has definitely helped us along the way.
