Weekend update

I haven't had much to write about this week since James has been doing really well. After they removed his tubes we have been able to hold him again and he has started getting breast milk through a tube in his nose with some added calories to gain weight. There has been some changes during the weekend, he is still doing good but we have had our concerns. When I came in to his room on Friday morning they had changed his bed to an incubated bed. This is just so he will get it more comfortable and less noise around him. His weight has not increased the way they were hoping. They had a blanket over the top so it would stay dark. On that night when my wife was in his room they had to make room for another patient in our room and when they came, my wife overheard their report to the nurse. The patient was a three year old boy that had been running a fever and he had been doing pretty bad a few days. They did not know what was wrong with him... we were really worried as our 17 day old son that just had a huge surgery only 9 days ago would get sick from him. My wife got upset, but she was able to talk to the nurses and they immediately moved James to another room. Good thing they had put James in an incubator that morning so he was well protected from air bourn viruses. It doesn't stop here, at 3 am Saturday morning we received a call from our nurse practitioner that were on duty. They said James is fine, but they wanted to let us know that he had just been having some heart racing episodes. They had been given him a bath and he had obviously been agitated and his heart started making small half beats and then his pulse started going up. The nurse later explained that he had small intervals of his heart raising and that it had lasted up to ten seconds at a time. The highest beats per minutes recorded was at 250 bpm. This had been going on for almost 30 minutes, the heart raising and then back to normal heart rhythm. I didn't know you could get your heart to beat that fast. They told us that we didn't need to worry and they had it under control, they just wanted us to know what had happened. We later found out that the reason for this episode could be because of electrolytes levels had decreased, he is on a medication called Lasix that help him get rid of fluids, when the fluids leaves his body they also bring the electrolytes with them. So the doctors decided to give him extra magnesium to help this issue. He haven't had any other episodes since and we are just trying to bulk up now. On Saturday he weighed 3185 gram. This is good, we have gained a little weight back. The speech therapist has also been visiting James, I know what you are thinking, he isn't talking quite yet, the speech therapists are actually working with his feeding. They are helping James to get introduced to the bottle and helping us fed him the proper way. He will easily get tiered so we can only give him a little milk at the time. He did very well today and they will probably let us feed him some milk on Sunday. The Cardiac Intensive Care Unit has been very full, but we were moved back to our room as soon as it was cleaned out. As soon as they have another room available on the other side of the CICU James will be moved there. That would feel like a step forward. We are on our toes and hoping James will keep staying strong. Also, thank you all nice people that follow our journey and thank you for all the little thing you do for us, we appreciate you.